Deck 2: The Patient Experience

Question 1

Susan meets face-to-face with cancer patients and asks them a set of open-ended questions about the stories they tell about their cancer. This is an example of which research method?

A) Semi-structured interviews
B) Participant observation
C) Ethnographic fieldwork
D) Textual analysis

Answer 1

A

Question 2

Susan records and analyzes the illness narratives shared by cancer patients during a community support group meeting. This is an example of which research method?

A) Semi-structured interviews
B) Participant observation
C) Ethnographic fieldwork
D) Textual analysis

Answer 2

B

Question 3

Susan is a cancer patient receiving chemotherapy treatment. She is also a researcher. She records her experience of receiving chemotherapy, including the illness narratives that she and her fellow cancer patients tell. This is an example of which research method?

A) Semi-structured interviews
B) Participant observation
C) Ethnographic fieldwork
D) Textual analysis

Answer 3

C

Question 4

Susan analyzes blogs written by cancer patients to learn about their illness narratives. This is an example of which research method?

A) Semi-structured interviews
B) Participant observation
C) Ethnographic fieldwork
D) Textual analysis

Question 5

"I got diagnosed with depression last year, which was really hard. I had to take a leave of absence from my job . But after six months of seeing a counselor and taking some medication, I feel a lot better now." This is an example of which type of illness narrative?

A) Expression narrative
B) Concordance narrative
C) Restitution narrative
D) Chaos narrative
E) Quest narrative

Question 6

"I got diagnosed with depression this past fall, and I feel like everything has been falling apart in my life ever since. I lost my job, my family is tired of me feeling so bad, the medication isn't working, and most days I can't even get out of bed. I don't think things will ever be okay again." This is an example of which type of illness narrative?

A) Expression narrative
B) Concordance narrative
C) Restitution narrative
D) Chaos narrative
E) Quest narrative

Question 7

"I got diagnosed with depression a few months ago, and at first I felt like everything was just falling apart and I couldn't get out of bed in the morning. But over time, I realized that I was learning some really valuable lessons through all of it, and now I wouldn't trade that experience for anything."

A) Expression narrative
B) Concordance narrative
C) Restitution narrative
D) Chaos narrative
E) Quest narrative

Question 8

Which of the following represents a personal source of uncertainty for an organ transplant patient?

A) Unclear expectations for the person's job responsibilities
B) Confusing process of signing up for the transplant waiting list
C) Not having enough information about a kidney failure diagnosis
D) Worrying about what a new dating partner will think about the transplant
E) Not knowing how to respond to nosy questions from others about the transplant scar

Question 9

Which of the following is not a component of medical decision making according to Politi and Street (2011)?

A) The best clinical evidence
B) The patient's values and preferences
C) The physician's opinion
D) The patient's desire to be involved in the decision-making process
E) The feasibility of the treatment decision

Question 10

According to research by Dyche and Swiderski (2005), what is the most important thing when it comes to creating agreement between patients and their providers about the patient's concerns?

A) Whether the physician asked the patient about the patient's concerns
B) Whether the patient interrupted the physician
C) Whether the physician interrupted the patient
D) Whether the patient asked the physician questions about the patient's concerns
E) Whether the patient shared truthful information with the physician

Question 11

Which of the following represents a medical source of uncertainty for an organ transplant patient?

A) Unclear expectations for the person's job responsibilities
B) Confusing process of signing up for the transplant waiting list
C) Not having enough information about a kidney failure diagnosis
D) Worrying about what a new dating partner will think about the transplant
E) Not knowing how to respond to nosy questions from others about the transplant scar

Question 12

Which of the following represents a relational source of uncertainty for an organ transplant patient?

A) Unclear expectations for the person's job responsibilities
B) Confusing process of signing up for the transplant waiting list
C) Not having enough information about a kidney failure diagnosis
D) Worrying about what a new dating partner will think about the transplant
E) Not knowing how to respond to nosy questions from others about the transplant scar

Question 13

In the PACE communication skills training protocol, patients are trained to do which of the following?

A) Tell the doctor detailed information about how they are feeling
B) Ask the doctor questions
C) Make sure they correctly understand what the doctor is saying
D) Share any concerns about the recommended treatment

Question 14

Lucy's doctor gives her instructions on how to take a prescribed medication, and Lucy says, "I'm worried about the side effects." This is an example of patient participation.

Question 15

Peter's doctor recommends that he get a CT scan, and Peter says, "Actually, I'm not willing to do that." This is an example of patient participation.

Question 16

According to Beckman and Frankel's (1984) research on physician interruption, when doctors didn't interrupt their patients, most patients talked for more than 4 minutes before letting the doctor respond.

Question 17

As a culture, we tend to like restitution narratives.

Question 18

As a culture, we tend to like chaos narratives.

Question 19

As a culture, we tend to like quest narratives.

Question 20

Some patients want to maintain their uncertainty.

Question 21

All patients want to be involved in making their own medical decisions.

Question 22

Decision aids result in more informed medical decisions.

Question 23

What is the definition of patient participation? What are its four components?

Question 24

What is the definition of uncertainty? What are examples of medical, personal, and social sources of uncertainty?

Question 25

How does Ellen's story about breast cancer demonstrate power imbalances, status quo, and marginalized populations?

Question 26

What does the PACE communication skills training program teach patients? How effective is this training protocol?