Exam 11: Newborn Screening and Genetic Testing: Ethical Considerations

A nurse researcher has proposed a study that would require the analysis of thousands of newborn screening samples.Which ethical principle is this study most likely to violate?

A state health department is planning to redesign its newborn screening program.The nurse charged with heading this initiative would identify which concerns about using the Wilson and Jungner Classic Screening Criteria to guide this work?

The parents refuse newborn screening for their infant,who was born this morning.What nursing action is indicated?

A couple took their newborn home from the hospital yesterday.The pediatrician's office was notified this morning that the infant's newborn screen was positive.What information should the nurse provide to the parents?

One of a client's treatment options involves an autologous stem cell transplant from cord blood.What is the best source of this blood?

A state legislature is considering the expansion of funding for newborn screening to assure availability to all newborns in the state.What ethical principle is being upheld by this group?

Which statements regarding newborn screening programs would the nurse recognize as supporting the ethical principle of autonomy?

A public health nurse is addressing legislators on the topic of funding for newborn screening.Which topic should be this nurse's priority?

Members of an obstetrical practice group have decided to screen all pregnant women for drugs,alcohol,and nicotine.What is the most important aspect of planning for this screen?

How would the nurse explain the process of newborn screening to new parents?

The mother of a newborn states,"I am surprised that my baby is only being tested for 30 genetic diseases.When my son was born in another state he was tested for several dozen." How should the nurse respond?

A newborn's screening tests indicate the presence of a hemoglobin disorder.Which assessment findings would the nurse expect in this newborn?

A research study is conducted using newborn screening samples analyzed and stored over two years at a state health department.Study results are inconsistent and erratic.What are the likely reasons for this variability?

Which newborn sample would be best to screen for prenatal drug,alcohol,and nicotine exposure?